Today We Say Good Bye To Baby Aiden…but

Today we say good Bye to Baby Aiden, he is the son of Youth Pastors Jesse and Jessi.  This baby has an amazing testimony.  Baby Aiden was born without a trachea.  Doctors assured the parents that he would not live past a few hours beyond birth.  Through prayers and medical science a trachea was made for him, the miracles of God at work.  This baby brought nurses , doctors therapists, friends, family and strangers to their knees for healing prayer.  On Sunday May 27, 2012, Baby Aiden won a different battle, he won the battle to be with our Lord in His arms, pain-free and singing praises to the Lord.  Why is this a victory?  For us left on earth it hurts and will continue to hurt, but for Baby Aiden and our Lord, he triumphed.  This baby brought many of us in prayers together for the same cause.  God’s mission accomplished.  Sometimes we don’t seek God when things are going good, but when a trial comes our way we certainly do look for Him.  Let’s not wait to seek God during a trial, let us follow the example of Jessi and Jesse, they never lost faith or hope in God.  They know that one day they will be reunited with Baby Aiden in Heaven. He has a twin brother and older brother that he left behind.

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This song is dedicated to Baby Aiden as he rests in the Lord’s Arms…

A Mother’s Day Tribute and Celebration of a Miracle

If you would have told Rosie Moore, Author of A Story of Faith and wedding and event planner for 27 Miracles that 2.5 years ago she would have endured a preterm delivery and a life in the NICU for 5 months as well as a life of endless doctor visits, therapy visits and more equipment than can fit in a room, she would have probably said, thanks but no thanks.  But sometimes we cannot project the destiny that we are to walk through.  God always has a plan.  That was the case with Rosie Moore and her husband Marcus Moore. 

When Deb Discenza of Preemie World asked Rosie Moore if she can publish an update on Kaleb now that he is at the 2.5 year old survival mark for Mother’s Day, Rosie Moore agreed.  She shares her story because there is hope.  Hope for all those who this very second have their baby in the NICU.  Hope  for those who just brought their baby home with more medications and treatments than they can imagine. 

On this May 13 2012, Have a Happy Mother’s Day! I know that some out there are celebrating in the hospital with their baby and some are at home dealing with the every day medical treatment of their baby; but one thing is certain, no matter what stage you are in at the moment, you are still the mother of this baby and no matter how many monitors or medications and treatments the baby is enduring, they are beautiful in our eyes.

Today won’t you tell a mother who is going through a hard time medically with their baby that she is doing a great job and that baby loves her more than anything.  Help us lift up a mother today who is waiting for the day her baby can come home. Help us lift up a mother who has her baby at home but is still going through multitudes of treatments.  Finally help us always encourage a mother who this will always be their life; a baby who has special needs and will always be a special needs child into adulthood.  God made these babies special for a reason.  Help them feel supported.  Visit Nathaniel’s Hope for how you can help a special needs family.  http://www.nathanielshope.org/

Read below Preemie World’s Interview with Rosie Moore :

Preemie World

Happy Mother’s Day!!

www.27miraclesbyrosie.com

http://www.facebook.com/home.php?#!/pages/A-Story-of-Faith/328844927127645

http://www.preemieworld.com/blog/

http://www.nathanielshope.org/

 

 

Happy Mother’s Day Macaroni Kid Writes about Kaleb

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On Oct. 13, 2009 I was rushed to surgery when the baby’s heart rate dropped. After an emergency C-section at the Walt Disney Pavilion at Florida Hospital for Children, Kaleb was welcomed into this world… 13 weeks early. He was just 1 lb., 10 oz. and 12 inches long.

He was admitted immediately to the Neonatal Intensive Care Unit (NICU). He was so tiny that he fit in our hands and we could do nothing but hope and trust that God was in control. As you can imagine, it was a very stressful time. But Kaleb was so strong and he continued to improve. There were many good days, and some bad ones too. It seemed that for every two steps forward we’d take ten big ones back.

With time, Kaleb came off the ventilator and CPAP and continued to show improvement. He had problems eating so he had to have additional surgery to have a bilateral inguinal hernia repaired and a feeding tube inserted to help him get the nutrition he needed.

Kaleb called the hospital home for the first five months (that’s 150 days!) of his life before he was finally able to come home with us in March 2010. With the help of the nurses, respiratory therapists and doctors at the Walt Disney Pavilion at Florida Hospital for Children who were such a big part of his life for 23 weeks, we now have Kaleb, our little miracle from God… a precious 2year old little miracle. We hope that anyone who reads this will find encouragement and understand that miracles can and do happen. Our own Kaleb is a testament to this. And we thank God and Florida hospital for this miracle and blessing bestowed on our family.

I tell parents who have their babies in a NICU, “Never lose faith.” Take pictures daily of the baby that way when you feel like nothing is taking place you can look back and see the baby’s growth and improvement.

Kaleb has some medical issues. He has a Gtube, an inguinal hernia; he has had cardiac problems, and has only one kidney.  But more than all that, Kaleb is strong, he encourages others with his beautiful smile and he is a fighter. He is our little miracle, our little “Pumpkin”; he is our very own STORY OF FAITH and the greatest present any mother could ever ask for. 

Happy Mother’s Day!
– Rosie

Comments

1) Rosie Moore said:
Thank you Macaroni Kid for posting our story here for Mothers’ Day. If anyone would like to purchase a book, know that part of the proceeds goes towards Nathaniel’s Hope, a special needs organization for children
 

Proudest Moment in the NICU

When Deb Discenza of  Preemie World Family approached Rosie Moore, author of A Story of Faith and asked her to describe the proudest moment in the NICU that she had out of the many ones that she experienced, Rosie Moore had to say it was the first time Kaleb could wear clothes.  It was right in time for Christmas.  The baby’s bib was as long as his body.  Bless his little heart, but oh so cute. Read the pdf below .

Preemie World Family May 2012

So as a parent when you get told that it is okay to dress your little preemie when they reach 3 lbs, enjoy it, but don’t buy too many preemie clothes because before you know it they will outgrow them!

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Kangaroo Care

Most recently Rosie Moore, author of A Story of Faith, was approached by Emily Johnson of Trinity Western University in British Columbia inquiring if she may interview her  so that she may write a story on Kangaroo Care and the importance of it in the NICU. She wanted to develop a brochure that would be beneficial to educate nursing students and nurses.  Rosie Moore agreed to the interview and Emily was able to produce the brochure that you see here in the pdf.

Kangaroo Care Brochure

As a parent of a preemie, Rosie Moore herself saw her baby Kaleb’s vitals signs improve right before her eyes.  If you or someone you know has a preemie, encourage kangaroo care and even when they get older that they do not need the kangaroo care, bond with that baby every day as much as you can. The old wives tale that you will spoil the baby holding him so much, in this case is not accurate.  Why you ask? Because these babies came to the world sooner than they needed tom, they did not have the privilege to grow inside a mommy’s belly for 9 months.  They are going through pain and suffering with tests, needles and discomfort.  A mother’s heart beat and breathing and voice close to the baby helps to soothe the baby as if they were inside mom’s belly.

You will see even Marcus, Kaleb’s dad doing Kangaroo.  Because the baby will need the warmth of his dad as well and to hear his voice. This will create a smooth transition for the baby and the father to bond.

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Preemie Power Faithful Kaleb

 

January 20, 2012 By 1 Comment

Kaleb M. ~ Super Hero Alias: Faithful Kaleb

Kaleb MAge: 23 months
Weight at Birth: 1 pound 10 ounces
Weeks Gestation: 27 weeks
Time in the NICU: 150 days

Diagnosis, complications, surgeries?
Gtube, inguinal hernia, Had BPD, cardiac problems, 1 kidney

Why should your child be recognized as “Preemie of the Year”?

On Oct. 13, I was rushed to surgery when the baby’s heart rate dropped. After an emergency C-section at the Walt Disney Pavilion at Florida Hospital for Children, Kaleb was welcomed into this world. He was just 1 lb., 10 oz. and 12 inches long.

He was admitted immediately to the Neonatal Intensive Care Unit (NICU). He was so tiny that he fit in our hands and we could do nothing but hope and trust that God was in control. As you can imagine, it was a very stressful time. But Kaleb was so strong and he continued to improve. There were many good days, and some bad ones too. It seemed that for every two steps forward we’d take ten big ones back.

Kaleb’s mom Rosie Moore wrote a book, A Story of Faith, about her experience to share hope with other families. Find out more.

With time, Kaleb came off the ventilator and CPAP and continued to show improvement. He had problems eating so he had to have additional surgery to have a bilateral inguinal hernia repaired and a feeding tube inserted to help him get the nutrition he needed.

Kaleb called the hospital home for the first five months of his life before he was finally able to come home with us in March 2010. With the help of the nurses, respiratory therapists and doctors at the Walt Disney Pavilion at Florida Hospital for Children who were such a big part of his life for 23 weeks, we now have Kaleb, our little miracle from God. We hope that anyone who reads this will find encouragement and understand that miracles can and do happen. Our own Kaleb is a testament to this. And we thank God and your hospital for this miracle and blessing bestowed on our family.

Using three or more typical characteristics of a Super Hero, please describe your child.

Kaleb is strong, he encourages others with his beautiful smile and he is a fighter.

What advice do you have for future NICU parents?

Never lose faith. Take pictures daily of the baby that way when you feel like nothing is happening you can look back and see the baby’s growth and improvement.

What kind of support would have helped you most during your journey?

The support of other parents who were out of the NICU and experienced what I went through.

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A Thank You from NY Health on RSV Awareness

Dear Rosie,

      Thank you again so much for sharing your story! I can’t even imagine what it was like to go through those five months with Kaleb in the NICU. But with your help, we’re looking forward to raising awareness about the special health needs of preemies, RSV and how it can affect premature babies, as well as key RSV prevention methods. If you’re comfortable, we’d be thrilled to have you on board for potential media opportunities and would love to schedule a call to chat through your story and hear the story in your own words. 

 Best,

Heather

 Heather Papsun

NY Health

250 Hudson St., Floor 15 | New York, NY 10013 

(P) 212.704.8112 | (M) 917.531.2686 | (F) 212.704.0117 

| www.edelman.com